About Us
Piper's Dream
My Pipes Dream is a play on words. My daughter Piper was nicknamed Pipes when she was a tiny little tike. When we found out she had Rett Syndrome we immediately wanted to find a cure. We knew that a "cure" for this horrific neurological disorder was basically a pipe dream. So that is where the name "My Pipes Dream" Came from. If Piper could verbalize her dream, Im sure she would say she would love to run, jump, play and sing! But since Piper was diagnosed at 18 months old, those dreams have seemed farther and farther away. We opened a 501(c)3 back in 2019 so that we could give funding to new medicines, research and the potential cure. After being in the special needs community for many years and having frustrations and special needs ourselves, we also wanted to give back to local families who need extra help
Helping Local Families
We help local families that have extra needs to get the help that may not be provided through a waiver or insurance. This includes but is not limited to equipment, communication device, travel for medical procedures, transportation or funeral costs.
Rett Syndrome Research
We fundraise locally to raise money for the potential cure of Rett syndrome and treatments or therapies that may improve our girl's longevity and quality of life. Rett Syndrome Research Trust and International Rett syndrome Foundation two leading of the organizations that support not only Rett families, but the scientists in the lab who have dedicated their lives find a cure for our girls and boys.
The Vejrosta Family
Testimonial
Several years ago Peter and Heather Caster came to me because our family had a need and they wanted to help fulfill it. I have a daughter with Rett Syndrome and she was turning 10 years old and I could no longer safely get her in and out of a normal vehicle after an injury to my neck and spine. The goal was a Accessible van with a ramp. A new vehicle purchase was not possible for my family as we were living on one income so I could care for our child.
As soon as I gave the okay they went all out. Bake sells, car washes, donation jars , advertisement and more. Concluding in a wonderful event at their home with catering, a band, a raffle and a silent auction. All almost completely arrranged by Heather and their friends and family.
They were able to raise enough for us to purchase a used ramp accessible van and got the funds to us as soon as asked. They often check in on us to make sure we have everything we need. I don’t know that my back or sanity would have been saved if not for their generosity and charitable spirits.
Teresa and Abigail Vejrosta
The Hinton Family
Testimonial
In 2019, Heather and Peter hosted a fundraiser for a wheelchair accessible van for my daughter Kiki. Kiki has Rett syndrome and as she continues to grow older and bigger, I found myself in a position of needing an easier and safer way to get her in and out of a vehicle. Heather and Peter reached out to me to help. They generously used their home to make this fundraiser event possible. The event included food, drinks, games and a silent auction. It was such a fun filled evening surrounded by friends, family and people who care and want to help others. With the money that was raised at this event, we were able to open up a savings account so that we could start our search for our perfect van for Kiki. Fast forward to today, and we have found our perfect van for Kiki! I am beyond grateful for Heather and Peter so selflessly and graciously helping my family in a time of need. This was a true blessing to us that we will never forget. It also left a lasting impression on me to want to help others in need as well.